Help shape autonomic dysreflexia monitoring built by someone who lives it.
ADID is inviting people living with spinal cord injury to help evaluate a smartwatch and Android phone platform designed to support earlier awareness, better episode documentation, and clearer communication with caregivers and clinicians.
ADID was founded and architected by a C4–C5 quadriplegic who has lived with spinal cord injury since 1998 and has experienced autonomic dysreflexia firsthand. The platform was shaped by real daily-use testing, software engineering experience, and the practical reality that early symptoms can be subtle, fast-moving, and difficult to explain after the fact.
Why this pilot matters
Every person experiences autonomic dysreflexia differently. We need real-world feedback from the SCI community to improve detection behavior, usability, accessibility, and clinical reporting.
You know your body better than anyone.
The most important early feedback comes from people who can feel when something is changing and can compare that experience against the heart-rate patterns ADID records.
AD episodes are hard to document later.
ADID records time-stamped heart-rate data and episode notes so the conversation with caregivers or clinicians can start from a clearer record instead of memory alone.
Accessibility must be tested in real life.
Large controls, simple navigation, high contrast, and low fine-motor demand are built in, but real users are the only way to prove whether the workflow works under pressure.
Your feedback shapes the product.
Pilot users help us find false alarms, missed events, battery problems, confusing screens, and the kinds of reports that would actually help during rehab follow-up.
Who we’re looking for
We are starting with a small number of people so we can listen carefully, improve quickly, and keep the process manageable.
Good fit
- ✓People with spinal cord injury, especially T6 and above
- ✓People who experience autonomic dysreflexia or suspected AD symptoms
- ✓People willing to wear a smartwatch during normal daily routines
- ✓People comfortable sharing feedback about what worked and what did not
Technology used
- iAndroid phone during the pilot
- iWear OS smartwatch for heart-rate monitoring
- iADID mobile app for live monitoring and episode logging
- iSecure dashboard for reviewing trends and episodes with authorized care contacts
What participation looks like
The pilot is meant to fit into normal life, not create a complicated research burden.
1. Wear the watch
Use the watch and phone during ordinary routines so ADID can record heart-rate trends and device behavior in the real world.
2. Log what you feel
When you suspect AD, log the episode, possible cause, and notes such as bladder, bowel, skin, pain, position, or unknown trigger.
3. Review patterns
Look at the recorded heart-rate windows around the episode so we can compare what the software saw with what you felt.
4. Tell us what to fix
Feedback about comfort, battery life, false positives, missed events, screen layout, and caregiver communication is just as important as the data.
What ADID is and is not
We want pilot users and care teams to understand the current status clearly.
ADID is designed to help with
- +Earlier awareness that something may be changing
- +Structured episode logging and trend review
- +Caregiver and clinician communication
- +Learning each user’s personal baseline over time
ADID is not
- iA replacement for emergency care
- iA substitute for your clinician’s instructions
- iA confirmed diagnostic device
- iA reason to delay checking for AD triggers
ADID is an early pilot monitoring platform. It is intended to support awareness and documentation of possible autonomic dysreflexia events. If you suspect AD, follow the response plan taught by your medical team and seek appropriate care.
Email info@adid.app. Tell us your connection to spinal cord injury, whether you experience autonomic dysreflexia, and the best way to contact you.